Saturday, December 17, 2011

Christmas traditions: St. Nick Day



This year is our first year at home during Christmas, so it's our first opportunity to have our own Christmas traditions. Both my husband and I were missionaries in Hungary and are both of Danish descent, so it only makes sense to bring some of those traditions in to our family. In both Hungary and Denmark, December the 6th is St. Nicholas' Day (Hungarian: Szent Mikulás Nap). We had Peter put out his rainboots for the night and here's what he got:



  • A little Christmas tree to have in his room (decorated with lights and chocolate ornaments)
  • A St. Nick figurine with more chocolates
  • A little Christmas elf figurine (Danish: Jule Nisse) that my grandma gave us to have around our house at Christmas time -- a Danish tradition. And yes, it's a troll doll; that's what my grandma has around her house, though I'm not sure Troll dolls are actually used in Denmark. Peter was a little concerned that he didn't have any clothes. I guess we're going to have to make him some. 
  • A Christmas count-down calendar
  • Nuts (at the bottom of his boots)
  • A letter from St. Nick for Peter:

"Christmas is almost here, so start marking the days off your calendar. Before you know it, I will be flying into Atlanta with my sleigh packed full of toys for all the good girls and boys.

Listen to your mom and dad and your teachers. Be a good boy and I will be back on Christmas!

Meanwhile, will you take care of my little friend? He is a Jule Nisse, a Christmas elf. He likes a bowl of rice or porridge each night. You may also want to draw him some pictures or let him play trains with you. He can be a little mischievous, but he will bring you good luck.

Have a wonderful December!"

We are looking forward to more Christmas traditions this month!





Thursday, October 20, 2011

VX-770 submitted to FDA for approval


Vertex, the pharmaceutical research firm that has developed VX-770 (now called KALYDECO) has started the FDA process to have this drug approved for CF patients with the G551D mutation. Although Peter does not have this mutation (only about 4 percent of CFers do), we are still thrilled for VX-770 to be headed towards the market. You can read the CF Foundation's press release here

KALYDECO/VX-770 is the first drug to address the root cause of cystic fibrosis. In CF Foundation CEO Robert Beale's words, it is "proof of concept" that a drug can change how cells interact with the faulty CFTR protein. You can read my post on how VX-770 works here

Of course, we are most excited about VX-809 in combination with VX-770 which may make a difference for the majority of patients with CF. In any case, we are thrilled to have research going forward to extend the life of our little boy and other CF patients. Yay, Vertex!

Friday, September 23, 2011

Starting the IEP Process

Of course, I knew we would get here eventually, I just didn't anticipate it happening so soon. Most kids with CF get an IEP (Individualized Education Plan) or 504 plan (another type of special education plan) to accommodate for their health needs. Yet that often can be handled without a formal IEP or 504 in PreK. But Peter's psychological evaluation and his behavior in the classroom has convinced both his teachers, administrators, and myself, that he (and we!) really do need some specialized help so he can succeed. 

This week, I turned in the request for Peter to be evaluated for an IEP through our school district's special education department. After that came the small mountain of paperwork I had to fill out and gather to send back (see below). Oh, I never want to have to do that again.

I'm not the only one that feels this way. I talked to a friend recently whose son is in a special needs kindergarten. She said that the hardest part for her was filling out the paperwork and realizing that her child really did need to be in special education. Boy, I'm feeling that too. 

Of course, I don't how this process will turn out, and what accommodations Peter will need, but my hope is that he can remain at his current school. Now, we wait and wait some more. According to the letter I received with the paperwork, "It will be our goal to complete all testing and determine eligibility for special education services within 60-90 days from the date we receive a signed Consent for evaluation." Two to three months. Ughhh.

Meanwhile, we will work with Peter's teachers and the administrators at his school. (They really have been wonderful.) We'll read books about dealing with behavior disorders, and we'll see how Peter does in therapy. And we'll send speedy thoughts to the special ed department so we can continue on our IEP journey
 

A diagnosis, sort of

A couple weeks ago, we met with the psychologist who tested Peter in a 3-hour session last month. She gave us a lengthy report and talked about all the testing measures she used to evaluate Peter. It was a good meeting, but the results of the testing and what that will mean for our family's future is still unclear.


According to the psychological report, "Peter appears to meet much of the criteria for Attention-Deficit/Hyperactivity Disorder (ADHD), Predominantly Hyperactive-Impulsive Type . . . However, given his young age and the fact that he has not yet had a structured year of education . . . a diagnosis is not given at this time." Instead, he has been identified as having "Disruptive Behavior Disorder Not Otherwise Specified (NOS)."

After I got home, though, I realized, we hadn't really discussed was Disruptive Behavior Disorder was. Thank goodness for internet research. I found the best explanation on this site
". . . Clinicians may use the Disruptive Behavior Disorders Not Otherwise Specified (NOS) diagnosis, which is a kind of catch-all diagnosis for disruptive behavior problems in children.
A child diagnosed with Disruptive Behavior Disorder Not Otherwise Specified (NOS) has some features of Conduct Disorder or Oppositional Defiant Disorder, but not all of the symptoms necessary to meet the full DSM criteria for either disorder. The child demonstrates significantly impaired interpersonal and family relationships, and/or disturbed school functioning. The Not Otherwise Specified diagnosis enables the diagnosing clinician to document that there is a real behavioral problem occurring, but to do so in a tentative manner, which can be clarified in greater detail at a later time as more information becomes available."
Most useful were the psychologist's recommendations:
  • Start Peter in individual play therapy (which will be with a child psychologist).
  • Refer Peter to the Special Education department in our school/district for accommodations.
  • Have an updated psychological evalution when Peter turns 6 for a more accurate diagnosis.
  • Work with school to make accommodations for his behavior.
  • Educate ourselves about ADHD.
As you can imagine, we are still trying to adjust to this news. Making sense of a conduct/behavior disorder while handling the daily demands cystic fibrosis has been a challenge. What has been great, though, is talking with several other people whose kids have ADHD. They have been encouraging and supportive, and I'm so grateful we're not alone in this.

Sunday, September 11, 2011

Earn CF Survey Money


When there's an opportunity to earn a little money on the side, I'm all for it--especially since CF medication and doctor's bills cost so much. For over a year now, I've been taking periodic CF-related surveys through WWMR. They pay me $25 per survey! They offer the same opportunity to any other person with CF or CF caregiver. I'll also get a referral bonus if you sign up. Here's what to do:


If you are an adult individual (over 18 years of age) diagnosed with CF, or an adult caregiver to younger individuals with CF:

Send an email to CF_Panel@wwmr.com with your name and telephone number, and mention Marchet Butler as the person that referred you. and WWMR will call you back,

OR

Call the WWMR CF Patient Panel number toll free at 1 (888) 947-2339, choosing option 1 at the main menu and then option 1 for CF. Mention Marchet Butler as the person that referred you.

Saturday, September 3, 2011

Running for Peter at the Big Peach Sizzler this Monday!


Over the past two years, I have become an avid runner. Running has taught me so much about myself and what it means to set goals and achieve them. It's also a great exercise for loosening mucus in the lungs, and that was my initial reason for learning to run--so Peter would grow up in an environment where running and exercise were part of life. Hopefully, he will catch the enthusiasm and commitment that I have for this wonderful sport.

Last month, when I found out that the Big Peach Sizzler, a 10K race on Labor Day, was benefiting Miles for Cystic Fibrosis, I had to sign up. I have several of my running friends supporting me/running the race as well. That means a lot. Other friends have been super encouraging of my running online as well. (Click here if you want to donate to the charity in support of me.)

So here's to strong legs and fast feet on Monday! I'm running for Peter!

Tuesday, August 30, 2011

Letter to PreK Teachers about Cystic Fibrosis Care



Last year, I posted a letter to give to Peter's preschool teachers, and it received such a good response, I thought I would post the updated letter we used this year before Peter started Georgia PreK. (I borrowed much of it from Lisa C. Greene's excellent Letter to Teachers about My Child's Special Needs). Feel free to use and adapt my version.

Dear Teachers:

Peter has cystic fibrosis (CF), a life-shortening genetic disease that clogs his lungs, digestive system, and sinuses with thick sticky mucus. CF is not contagious and does not affect Peter’s mental abilities. However, some accommodations are necessary to keep Peter as healthy as possible while in your care. Although Peter has a serious health condition, he acts like children his age and is excited about going to PreK. We try to keep life as normal as possible. Let us know if there is any other information we can provide to make his time with you a positive experience!

Thank you,

Marchet and Jacob Butler

Eating

Peter does not have any food allergies that we know of, but before he eats, he must have medicine. His body can’t digest proteins, fats, starches or complex carbohydrates on its own. So, he takes pancreatic enzyme supplements (Zenpep) to help his body digest his food. The only exception is water, fruit, juice, or treats that have only simple sugars in them.

Right before a meal, open 3 capsules of Zenpep on applesauce or other fruit sauce. Stir them in a bit and have Peter eat the applesauce and enzymes. He should swallow the Zenpep “beads” without crushing them. For a snack, he only needs 2 capsules of Zenpep. The medicine works for about an hour, so if it has been an hour since he has eaten last, he will need more Zenpep before he eats again. We are happy to provide applesauce for Peter’s medicine.

Please make sure he washes his hands before he eats and wash and sanitize any surface he eats off of. At mealtime, please allow Peter enough time to eat all of his food (or encourage him to eat all of it). Kids with CF have a high calorie, high fat diet due to the body’s decreased ability to digest food. Because of this, whole milk and butter (and cheese if appropriate) should be included in every meal. Also, dipping sauces, gravies, and mayonnaise are a great way to add extra calories to his diet. I can also provide Carnation Instant Breakfast mix for his whole milk. He may need to have extra snacks if he starts losing weight.

Hand Hygiene

Frequent hand washing is critical because it is the best way to prevent colds. A cold can turn into a lung infection for Peter, which might require hospitalization. Cold/flu season is a tough time and we do the best we can. We appreciate your strict sickness policy; that will especially help Peter stay as healthy as he can through the school year.

When doing activities with shared scissors, glue, markers, etc., please ask Peter to sanitize his hands after the activity is over. The reason for this is to reduce his odds of contacting a cold or virus from other children especially during flu season. If infection becomes a problem, we can provide his own set of craft supplies.

Bathroom

Peter may require more frequent bathroom breaks or may express a sudden need to use the restroom. This is due to the digestion issues with CF. He is potty-trained and will tell you if he needs to go to the bathroom other than the scheduled bathroom time. If Peter complains that his stomach really hurts, it is usually because he needs to go to the bathroom, and sometimes he needs to be reminded of that.

Vomiting

On rare occasion, Peter vomits when his stomach has to get rid of the mucus that has built up there. He generally will start crying and gripping his stomach like he is in pain right before he throws up. If Peter vomits, he is usually just fine right after he has washed out his mouth with a little water. Unless accompanied by a fever or other symptoms, vomiting does not mean Peter is sick.

Hydration

Peter loves to be physically active. In fact, exercise is one of the best ways to keep Peter’s lungs healthy, and we try to exercise everyday. During physical exercise, please make sure Peter gets plenty of fluids. CF causes him to sweat more, so dehydration can be an issue. We would appreciate it if he could keep a water bottle nearby.

Helping Classmates Understand CF

It's okay to let my Peter’s classmates know about his CF as long as it is done in an appropriate way:

“Peter has to take his applesauce and enzymes to help his body use the food he eats.”
“Peter has to cough to keep his lungs healthy. It helps get the yucky stuff out.”
“Peter has something called CF. He was born with it. You can’t get CF from being around him or playing with him.”

Please do not tell the children or Peter that he is going to die of CF. We do not know what the future holds for our little boy or for the treatment of CF. We hope someday there will be a cure. We would also be happy to come into the classroom to teach about CF if needed.

Tardiness

Peter may come in late on occasion due to morning respiratory treatments and medication. We will do our best to make sure he is on time. However, it takes up to an hour each morning to complete his medication and treatment regime and that may increase if he has a lung infection or cold.

Absences

Peter may be absent due to illness more than other children. He also has frequent doctor’s appointments as well as quarterly CF clinic visits.

Coughing

Currently, Peter is not having coughing issues. However, as CF progresses, Peter may cough frequently; it is his body’s natural method to clear his lungs of mucus. The cough is not infectious. Peter should not be asked to suppress coughing or stop coughing. He should be directed to cover his cough into his elbow or tissue (not his hands).

Inhaler

If Peter has a cough or labored breathing, we may ask you to administer inhaled Albuterol at school. We will provide instructions if this treatment is necessary.

Sinus Rinse/Nasal Steroid

Peter has chronic sinusitis due to CF, especially in the winter. We frequently use sinus rinses and a nasal steroid to help clear out the mucus so he can breathe. If this becomes necessary, we will provide instructions for administering this treatment.

Q&A: How Often Should you do Sinus Rinses on a Baby or Young Child?

I'm continuing the Q&A feature on this blog. If you have a question you would like me to answer, please contact me through our contact page.

Question:
My son is 6 months old and was diagnosed at birth with cf. I plan to get a [sinus rinse] bottle and use it for future congestion. My question is, would you use it on him twice a day as a preventive measure or only when congestion comes on? He doesn't have daily congestion and I only do cpt [chest physical therapy] for airway clearance. it is really just when he is sick that he has congestion, which has only been once now, but it was a bad one. His older brother and sister do have very bad allergies also, which he may end up having. Thanks for the help.

Nicole

Answer:
Dear Nicole,

I can only answer from my experience, since I am not a doctor.

The answer to your question is (in my opinion) is: it depends. Some kids with CF struggle with sinus issues and then others have major digestion issues. There are those with CF who don't have as many digestion issues, but the lungs are a primary concern. In our case, Peter's sinuses have been one of the most prevalent complications of his CF. (Peter was diagnosed at a year and a half. Shortly after that, his chronic sinus problems prompted our CF doctors to refer him to an ENT.)
NeilMed Sinus Rinse Saline Nasal Rinse, Premixed Packets
So, I would talk to your CF specialists about their recommendations for using a sinus rinse. If your little one doesn't have a lot of sinus concerns, they may recommend just sticking with the CPT without a sinus rinse. Or they may recommend using a rinse on occasion. If it were me, I would (at minimum) use sinus rinses when your son is congested from sickness or allergies as a way to clean out those passages. As to the frequency, it really depends on your doctors' recommendation and how much mucus and discharge you are getting out of the sinus rinse.

For Peter, we do sinus rinses1-2 times a day as his ENT recommends. We increase that when Peter is sick, congested, struggling to breathe (in the sinuses), or just sounds "snotty." I can tell Peter needs to do more sinus rinses in the day if the rinse dislodges more than a few small boogers. (Sorry, guys. I have to be kind of gross now.) If we get a stream of snot and mucus (yes, it can be that bad), we know Peter is really clogged up and his sinuses need more frequent cleaning out during the day. We have done up to 5 or 6 rinses a day when Peter is really ill. Peter is getting to know his own sinuses and acknowledges when he needs to "do his nose," so that's also really helped.

For my husband and myself, we do sinus rinses when we are sick or have allergies. The nose is really the first line of defense when it comes to sickness, so when I feel congestion coming on, I go for the sinus rinse. I know your older two would probably benefit from sinus rinses as well!

You can read more about sinus rinses on my previous Q&A post: http://peterspavementpounders.blogspot.com/2011/08/q-can-i-do-sinus-rinses-on-baby.html

Tuesday, August 23, 2011

Q&A: Can I Do Sinus Rinses on a Baby?

I'm going to start a Q&A feature on this blog. If you have a question you would like me to answer, please contact me through our contact page.

Question: 
A friend of mine recently asked me advice about doing sinus rinses on a six-month-old child who has CF. Here's what she wrote: This child has lots of allergies and will benefit greatly at some point with the sinus rinses. Can you tell me when you start sinus rinses with Peter and how did you teach him to do them?

Answer:
Disclaimer: I am not a doctor. Before starting sinus rinses, it's important to check with your child's doctor to make sure it's okay. NeilMed does not recommend sinus rinses on children younger than 4 years, but Peter's ENT had us start right away with sinus rinses when he was one.

Here's my experience:

You can do sinus rinses on babies. I'm pretty sure this CFer would be fine starting right away with approval of your doctor. Whenever the child is getting stuffy, it's a good time to do a sinus rinse. The child may not like them for the few moments you do them, but afterwards, they can breathe, and that little bit of discomfort is worth it.

I don't use nose suckers or other fancy nose gadgets. For a kid with sinus issues, they are basically useless. We make mucus in all parts of the sinuses, and no nasal spray, aspirator, or syringe or is going to clean them out as well as a sinus rinse.

NeilMed Sinus Rinse Saline Nasal Rinse, Premixed PacketsWe use the NeilMed sinus rinse bottle, available at nearly any pharmacy and also online. They do make a pediatric version which has a smaller hole in the top and holds less solution, but you have to order it online. I would start with the adult bottle since you can get it easily. If it is too big, you can order a pediatric size. You can get deals on the bottles if you fan them on Facebook.
The sinus rinse bottle kit comes with packets of sinus rinse mixtures. We also use a homemade solution that our ENT gave us, and sometimes use generic sinus rinse packets from the pharmacy. (Sometimes you have to ask where they are. My pharmacy keeps them behind the counter. No idea why.) 

Either way (with packets or homemade solutions), you can dilute it down a bit for a baby or someone who is more sensitive to the solution. We mix up the solution with distilled water (new research shows it's dangerous to use tap water.) How do you know if a solution is too strong? Try it on yourself! If your nose burns from the mixture, it's too strong. (And then wash and sterilize the bottle before you use it on the baby.) 

Here's how we got Peter to do his sinus rinses when he was little. You can also see a video of it here
  1. To avoid flailing arms, wrap the baby's chest and arms in a towel. 
  2. Lean them over the sink and squeeze the solution very gently into one nostril. The solution will come out the other nostril with mucus and snot. Repeat until the solution runs clear.
  3. Repeat on the other nostril.
  4. Tilt the baby from side to side and forward to get the remaining solution out.
  5. Wipe nose with tissue.
  6. Cheer and clap! Yay, they did it!
  7. Dump out remaining solution and wash bottle. (Hint: the black top can be removed from the tube. That makes cleaning a lot easier.)
  8. Wash and then sterilize the bottle (directions for sterilizing here:  http://www.neilmed.com/usa/directions.php)
As Peter got older, I taught him to blow out the rest of the solution into the sink or a tissue, and he doesn't need the towel now or tilting from side to side. Peter doesn't necessarily like "doing his nose," but I really feel it's as important as brushing his teeth, and he has not had to have sinus surgery since we started the rinses. We do sinus rinses 1-2 times a day, no matter what. We do more rinses when Peter is stuffy from a cold or allergies.

Here's a few pictures of Peter doing his sinus rinse by himself. He doesn't always do it alone, but he knows how, and we're so proud of him!





Finally, please tell your friend that if chronic sinusitis (constant nose and sinus infections) is a problem, they will probably benefit from seeing a pediatric ENT, especially one that is familiar with cystic fibrosis. Also, since the child has allergies, I would make sure they are under the care of an allergy specialist. (We CF families love our medical specialists!)

Thanks for the question!

Marchet, mom to Peter who has CF and chronic sinusitis

Saturday, July 30, 2011

The Carnival's in Town!

You know it's getting close to school when the carnival comes to town. Peter and I had a fabulous mommy-son date after his Vest treatment last night.
Psst. . . You can read more about the photography techniques that I used to take these pictures at http://moms.momtog.com/blog/carnival-time.

Friday, July 1, 2011

On the diagnosis path again


For the past several months, we've been dealing with behavioral issues on top of Peter's cystic fibrosis -- defiance, extreme distractibility, difficulty making transitions between activities, and lashing out in anger. Peter's always been a high energy child, but this past year, things have reached a point where we suspect Peter may suffer from some neurological or behavioral disorder. Although not directly related to CF, Peter's behavior problems may be exacerbated by the treatments (which he doesn't always like doing) and possibly a side effect of the medication he takes.

At our CF clinic three months ago, Peter broke into a full-blown rage in front of his doctors. Yeah, nice. So, we've been on the diagnosis path again -- trying to rule out possible causes of Peter's behavior. His GI doctor took him off of Reglan and lowered his dose of Periactin to see if it helped. Three months later -- his behavior hasn't really improved and he's lost weight, so back up on the Periactin (it helps increase appetite).Our ENT had mentioned how large Peter's tonsils were, so we wondered if that might be affecting his sleep, and therefore, his behavior. So, our pulmonologist ordered a sleep study. The sleep study found that he had mild obstructive sleep apnea, but nothing requiring intervention. 

My next task was finding a child psychologist, but couldn't find anyone that the pediatrician, the CF social worker, or my therapist had recommended and who accepted our insurance. So, I finally went with a psychology practice from our insurance network. We had an initial consultation, and he's scheduled for a three-hour test/evaluation at the beginning of August. (That was the earliest date that worked with our schedule.) My hope is to have a treatment plan/behavioral interventions in place before Peter starts Georgia PreK in the fall. Yikes! That is coming up fast.

Raising Your Spirited Child Rev Ed: A Guide for Parents Whose Child Is More Intense, Sensitive, Perceptive, Persistent, and EnergeticMeanwhile, I'm also trying to educate myself about how to best handle things with Peter. I've been working with my mom, the director of a child development resource center, who has great suggestions for handling him. I've also been doing a lot of reading on the subject. I really enjoyed Raising Your Spirited Child. It put such a positive spin on the challenges of raising a more energetic/intense child, but it didn't go far enough in explaining how to correct behavior. I'm in the middle of another book a friend recommended, The Kazdin Method for Parenting the Defiant Child. It's research-based and uses good behavioral practices, but it's also going to take time and energy to implement. And that's when I'm done reading the book.

The Kazdin Method for Parenting the Defiant Child: With No Pills, No Therapy, No Contest of Wills
As if one person with a chronic disease wasn't enough, we are also dealing with with my husband's clinical depression. (I'm reading a book on that as well.) So life is a bit more complicated than usual.

I've stopped many of the volunteer and social activities I was previously involved in, as well as slowed down on my photography work. My family (and my own well-being to deal with these chronic illnesses) remains my biggest priority. So I've really focused on taking care of myself, exercising, eating right, and reaching out for education and support for those I love. It's a lot like my life was when Peter was first diagnosed with CF -- all of our morning and evening time devoted to treatments, practice, and learning while trying to cram in daily household maintenance and summer activities in between. I'm hoping that by the fall, we'll get back into a more regular routine and have some answers to our psychological concerns. 

Friday, May 27, 2011

Sandbox

We live in an apartment and our little deck isn't big enough for much, but I wanted to get Peter a little sandbox so he could have some fun while I work on the computer. So, we headed to Home Depot yesterday. A large mixing tub and two bags of sand later, we have his own little sandbox.

He couldn't wait to play in it this morning, pajamas and all.



Thursday, May 26, 2011

CF Spirit Night at Chick-fil-A, Alpharetta GA


Our Atlanta walk went great and to celebrate, we are having a CF Spirit Night at Chick-fil-A! So, if you walked with us, donated, or just want to eat chicken for a great cause, please come with your family and friends! We'll have cake, a spin-the-prize-wheel activity (50¢ a spin), and a craft for the kids. Get yourself dinner and Chick-fil-A will donate 10% of your purchase to the Cystic Fibrosis Foundation. Now, that's a great way to celebrate our walk!

Monday, June 6, 2011
6:00 - 8:00 pm
Windward Chick-fil-A
5180 Windward Pkwy
Alpharetta GA 30004

*Receipts must be turned in to the CF Spirit Night box inside.

Thursday, May 19, 2011

"Wear Purple for Peter" this weekend!


Purple is the color for cystic fibrosis awareness, and also the color of our team, Peter's Pavement Pounders. As part of our Great Strides weekend, we're encouraging everyone (whether they are walking, donating, or simply showing support) to wear "Purple for Peter" either Friday, Saturday, or Sunday and then upload a picture to the Peter's Pavement Pounders wall on Facebook.* A shirt, a scarf, a hat, or a ribbon . . . anything will do! Show your support for Peter and cystic fibrosis awareness. On Facebook, you can change your profile picture to something purple! Then tag your picture as Peter's Pavement Pounders.

Oh, and if you aren't a fan of Peter's Pavement Pounders on Facebook, give it a "like"! Thank you!

*Uploaded photos become the property of Peter's Pavement Pounders.

Tuesday, May 17, 2011

What Would You Do?



We hope you enjoy our new video for 2011. We are truly blessed to have so many people all across the country supporting our cause.

Now, take a minute to . . .

Monday, May 16, 2011

Mobile AL Great Strides 2011

Here are pictures from one of our branch teams (Mobile AL) that walked this Saturday! Here's what Megan, their team leader, told me: 
YAY!!! we both reached our personal goals this year. Together we raised $525.00. Sooo Happy. Just want to share. Love ya'll. Hug our little buddy for us. :0)
Congrats, guys!

Our Ogden UT team also walked on Saturday. Pictures coming soon . . . 


Megan designed their team T-shirt. Cute!

Every walker who raises $100+ earns a T-shirt. Go Chris!
  
The Azalea Trail Maids, ambassadors of Mobile AL, lined the starting point.






Saturday, May 14, 2011

Utah and Alabama teams walk today!

Good luck to our Alabama and Utah teams today! Remember, you can still donate to a walk fund even after the walk. I often tell people that the walk is symbolic, but the donation is what really matters. Thanks to everyone who is supporting us!

Thursday, May 12, 2011

Peter modeling his shirt

Here's Peter modeling the new Peter's Pavement Pounders shirt. We do have some extra shirts if you would like to buy one, please contact us. As of this morning, we have
  • 1 youth M ($8.00/each + shipping)
  • 4 adult M ($7.00/each + shipping)
  • 3 adult L ($7.00/each + shipping)
  • 2 adult XL ($7.00/each + shipping)


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