Thursday, December 23, 2010

Christmas is here already?

It doesn't feel like Christmas around here, not yet, anyway. Lights and decorations didn't make it up, and both Jacob and I have been working like crazy. It's only been for the past couple days that I've been able to get back to our normal schedule, and I've got a huge back log of housework I have to catch up on. So, here it is two days before Christmas and--except for Christmas cards, gifts, and playing Christmas music on the radio--we haven't done anything Christmasy. Sigh. I guess it comes down to the fact that we don't have a lot of time beyond treatments, work, and exercise. That's about all we can do.

Peter has been sick and we are back on TOBI (yeah, he still has Pseudomonas). He's also been on Tamiflu and of course, extra sinus rinses. Treatments and medication have become increasingly difficult to administer because Peter doesn't want to do them. He's always wanting to take a break or refusing to do his nebulizer meds because the mask is wet (from the medicine vapors). Sometimes I have to hold him to do his nebs since he will dump out the medicine if I leave him alone. That makes our treatment time up to 4 hours a day. Ugh, I hate administering those nebs!

Fortunately, he is getting better, slowly. The cough is still there, but the nasal congestion is calming down, and he's not as irritable as he used to be. I know this is the season for colds, but it is a huge burden whenever Peter gets sick. It takes twice as long for him to get better and two or three more treatments/medications per day to treat.

As to Christmas, I am going to put out my favorite decorations tonight. Gingerbread cookies or some other holiday baking . . . might happen. The most important thing right now is to get that treatment schedule back to a reasonable amount of time. Come Christmas, I hope our day is filled with family fun and holiday cheer, not medication and tough treatment time.  







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