Saturday, September 18, 2010

Frequently Asked CF Questions: Our Medication and Treatment Routine

Over the past week, I've had a few friends ask about Peter's treatment routine. Here's the medication and treatments we administer every morning and evening. All of it takes about 1.5 to 2 hours a day. If you add cleaning and sterilizing equipment, it's a bit longer. As you can imagine, our place feels a little like a pharmacy! Medication is a big chunk of our lives, but we are very grateful there are things that help, even though they only treat the symptoms, not the root cause of the disease. I marked meds with a star (*) if we use the generic.

Nasal Rinse (for irrigation of the nasal passages) and Flonase* (nasal steroid) -- I did a post on Peter's nasal rinse. Check it out.


The Vest Airway Clearance System (to loosen the CF mucus in the lungs) -- It's 40-50 min. a day of chest pounding fun!



Pari Vios Nebulizer (during Vest treatment) -- The compressor breaks up the liquid medication into breathable particles so it can be delivered directly to the lungs. 


Albuterol (to open the airways and allow for more productive coughs) -- This is medication administered through nebulizer, though we only do this one when Peter has a cough or cold.

Pulmozyme (to thin mucus in the lungs) -- This is CF-specific medication administered through nebulizer as well.
Periactin* (to increase appetite), Reglan* (to prevent vomiting), and Bactrim* (an antibiotic since Peter has a cold lately) -- These medications are administered through oral syringes. Can I just say that Target and CVS have the best oral syringes? I've tried all the pharmacies in the area, and since we go through a lot of syringes, I definitely have preferences!


Prevacid* (an acid reducer) and Zenpep (pancreatic enzymes for digestion) -- These pills are opened and sprinkled in applesauce because Peter can't swallow pills yet.

Culturelle (to promote healthy bacteria in the gut when Peter is on an antibiotic) -- This is also sprinkled on applesauce.

Axid* (another acid reducer) and SourceCF vitamins (to supplement the fat-soluble vitamins can't process) -- This are Peter's evening oral meds in addition to his other regular oral medications.

Whew! Can I also add breakfast/dinner, bathing, dressing, brushing teeth, and getting ready for the day/bed? In the morning, if I start right at 7:00, we can get everything done and be out the door right before 9:00. In the evening, I try to start by 5:00 p.m., so we can be done by bedtime, 7:00 p.m.

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