Saturday, September 18, 2010

Frequently Asked CF Questions: Our Medication and Treatment Routine

Over the past week, I've had a few friends ask about Peter's treatment routine. Here's the medication and treatments we administer every morning and evening. All of it takes about 1.5 to 2 hours a day. If you add cleaning and sterilizing equipment, it's a bit longer. As you can imagine, our place feels a little like a pharmacy! Medication is a big chunk of our lives, but we are very grateful there are things that help, even though they only treat the symptoms, not the root cause of the disease. I marked meds with a star (*) if we use the generic.

Nasal Rinse (for irrigation of the nasal passages) and Flonase* (nasal steroid) -- I did a post on Peter's nasal rinse. Check it out.

The Vest Airway Clearance System (to loosen the CF mucus in the lungs) -- It's 40-50 min. a day of chest pounding fun!

Pari Vios Nebulizer (during Vest treatment) -- The compressor breaks up the liquid medication into breathable particles so it can be delivered directly to the lungs. 

Albuterol (to open the airways and allow for more productive coughs) -- This is medication administered through nebulizer, though we only do this one when Peter has a cough or cold.

Pulmozyme (to thin mucus in the lungs) -- This is CF-specific medication administered through nebulizer as well.
Periactin* (to increase appetite), Reglan* (to prevent vomiting), and Bactrim* (an antibiotic since Peter has a cold lately) -- These medications are administered through oral syringes. Can I just say that Target and CVS have the best oral syringes? I've tried all the pharmacies in the area, and since we go through a lot of syringes, I definitely have preferences!

Prevacid* (an acid reducer) and Zenpep (pancreatic enzymes for digestion) -- These pills are opened and sprinkled in applesauce because Peter can't swallow pills yet.

Culturelle (to promote healthy bacteria in the gut when Peter is on an antibiotic) -- This is also sprinkled on applesauce.

Axid* (another acid reducer) and SourceCF vitamins (to supplement the fat-soluble vitamins can't process) -- This are Peter's evening oral meds in addition to his other regular oral medications.

Whew! Can I also add breakfast/dinner, bathing, dressing, brushing teeth, and getting ready for the day/bed? In the morning, if I start right at 7:00, we can get everything done and be out the door right before 9:00. In the evening, I try to start by 5:00 p.m., so we can be done by bedtime, 7:00 p.m.

1 comment:

  1. This is a great article. I’ve read in many other places before that but
    I did not get this type of effective and more useful text. It is really important now to
    vary your anchors as this seems more natural to user.
    This article helped me a lot to understand information.



Related Posts with Thumbnails